day 2

Hello again friends, well this is day 2 of my journal as I lay here in my bed at the nursing home a lot of things have come to mind of what I want to talk about today!  If it wasn't for the technology today I wouldn't be able to keep in reach with two of my favorite people thanks to skype I'm able to see and talk to my Aunt who is dear to my heart she is in Oklahoma and I'm in Ohio we usually play canasta together but neither one of us has been up to playing much at all! I enjoy just getting to talk with her cause she was in a nursing home after she got her new hip I didn't get to talk to her much at all but I prayed and she got better and got to come home she might be able to come and see me in September which I'm really looking forward to!  I really need a mom figure to be with me right now its been a rough road and I really would like to have my own mom with me I know in spirt she is watching over me and that is what keeps me going. 
   The other Person I talk to on skype is my cousin Penny she is more of a sister to me then a cousin she lets me vent and discuss what all is going on with me she has the heart of gold and I enjoy spending time talking and hanging out with her we also Play farmville together and when I'm not doing good she keeps my farm up for me!  If it wasn't for the support from them and from a few close friends I don't know how I get through each and everyday!  I end my day by talking to them thanks to the wonderful technology that we have! 
Right now as I lay here typing this I'm sick to my stomach and in a lot of pain, I started getting really sick to the point I have been bringing up bile I'm getting really tired of being so sick I just want to be able to eat and drink like a normal person and not have to worry will I get sick from that.  My stomach was doing good until I had an asthma attack and was put on high doses of solu-medrol which is a steroids for those of you that didn't know!  I was told that Prednisone and things were killing my body slowly I have gone back down to my regular dose of prednisone but I still cant eat anything and I feel my stomach is getting worse.  When I was sent back to the nursing home not being able to eat and things I told my Dr. of 12 years that I felt the Medical community just doesn't care about me anymore and he said its not me its my insurance.  I feel its a crying shame that you get judged by your insurance here in the united states, what is this world coming to. As we all wait to see if we are going to be paid next month and a lot of us depend on that check to keep us going or to live on its a shame that we have to go through all of this cause Our country doesn't know how to budget well if all of the politicians would cut there pays and all of the fancy perks they have maybe we wouldn't be so broke!  off my soap box now and back to me!  I saw my lung Dr on Monday and he said my lungs are sounding alright but my stomach is crap and that I need to call and get into my gastrologist to see what they can do to help me if anything well I called on Tuesday like I was suppose to and they said the first available appointment was august 17 so they put me with the secretary to see if she can work something out to get me in sooner well she talked to me and told me to hang on that she would get back to me on what the Dr wants to do by today well today has come and went and no phone call at all!  I called her again and told her I was getting worse but I still hadn't heard from her.  I hope and pray that they will figure out something soon because I'm getting tired of throwing up and being in pain.  The nursing home is getting tired of me being sick like this the nurses are getting on my case cause I cant eat and things its not my fault the last time this happened to me I was unable to eat for 3 months and then I was only able to eat bland foods no meat or things of that nature for 5 months then I finally was able to tolerate to eat normal foods that only lasted a few months now I have to start all over again I'm praying that its not that long for me cause my 36th birthday is coming up and I would like to be able to have dinner brought into me!  I have lost 40lbs so far since this started I'm happy about the weight loss but not about the way it is happening!  Ginger ale has been my best friend lately but sometimes I cant even tolerate it!  I'm thankful to the few friends I have made here that have been coming to see me and keep me company!  I have two terrific aides here that are the best to me the have helped me when I'm down and been great encouragement to me when I was doing better.  If it wasn't for them sometimes I wonder how I would be treated when they aren't here it doesn't seem like anybody gives a dam when I ask for anything they act like I'm asking for the world but all I buzz for is my meds and for my ginger ale and that is the only time I bug them.  Its pretty sad when  they tell me oops we didn't order your medicine so sorry you don't get what you need!  I just don't understand that when I Dr. says you need something they should keep it on hand and not wait till you run out of meds to do something about it!  I'm sitting her now waiting for nausea meds and pain meds  I have been waiting over an hour now.  I know I'm not the only patient here but when you can here them horsing around and things you start to wonder!  Heck they turn off my iv and leave it off for hours at a time cause they feel I shouldn't be on it not the Dr feels that way but the nurse!  I have had stomach issues since 2002 the first time I had pancreatitus I have had it several more times since then one time i had it for a year and a half I ended up with a feeding tube to get ride of it!  After that battle with pancreatitus I have had major stomach issues since.  I wouldn't wish this on my worst enemy!  I haven't been well enough to do my crafts or anything I haven't felt well enough even to get out of bed.  I miss going to the church service here and to coffee shop the only thing is I feel so out of place cause I'm the youngest one here but for the most part people are nice to me!  I have my friends and I have my enemies but in today's world who doesn't.  I have a lot of people who judge me for my weight and that bugs the heck out of me cause God didn't make us all skinny and he certainly didn't want us all to look alike if that was his intention we would be in big trouble cause we would all be at each others throat all the time!  I for one am glad that I have the heart of gold and where I want to do for others and they would do to me!  that is the Golden rule of life and if everyone follows it we would get along much better no one is better then the next person we all came from the same place maybe different times and parents but from the almighty God! With being overweight you are miss treated thinking you want to be that way and that you are lazy and all you do is eat I have been judge like that many times but you know what I'm not that way I was born heavy and then on top of that my medication that I take doesn't help!  I have tried many times to loose weight last year matter of fact I lost 120 lbs yes most of the year I was sick but I did it!  I don't eat all the time and when I do eat I eat things in moderation like I was taught to do.  But with that I gained a lot of weight when my body filled up with fluid and they have no reason why at this stage and game i really don't care about my weight I just care about being myself and enjoying what I do have!  God has given me a third chance on life so I want to live it for what it is!  Please say some prayers that they find a new medication to treat my asthma so that I can start eating and being myself again!  Until tomorrow Love and Prayers Anne